tag:blogger.com,1999:blog-10136851.post4614392062674067198..comments2024-03-29T03:42:27.128-07:00Comments on She Just Walks Around With It: Independentkristyhttp://www.blogger.com/profile/00879301751663532121noreply@blogger.comBlogger32125tag:blogger.com,1999:blog-10136851.post-26419895604838926752015-06-14T10:12:54.783-07:002015-06-14T10:12:54.783-07:00Sing Your Style Studio ,founded by Stephanie Swann...<a href="http://www.singyourstyle.com/" rel="nofollow"> Sing Your Style Studio </a>,founded by Stephanie Swann, is the place for you! We will assist you to expand your range, smooth out all your breaks, free your voice from strain…and much much more! Learn to sing easily with flexibility and strength and discover and empower whats unique to you!<br /><a href="http://www.singyourstyle.com/" rel="nofollow"> Sing Your Style Studio </a> <br /><a href="http://www.singyourstyle.com/" rel="nofollow">online voice instruction</a><br /><a href="http://www.singyourstyle.com/" rel="nofollow">online voice lessons</a><br /><a href="http://www.singyourstyle.com/" rel="nofollow">online singing lesson</a><br /><a href="http://www.singyourstyle.com/" rel="nofollow">voice lessons online</a><br /><a href="http://www.singyourstyle.com/" rel="nofollow">private voice lessons online</a><br />Sing Your Style Studiohttps://www.blogger.com/profile/16846760453427048625noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-24235154830622926432013-08-28T10:13:05.212-07:002013-08-28T10:13:05.212-07:00Hello,
Are you job Shaker? Are you searching a bet...Hello,<br />Are you job Shaker? Are you searching a better job? Are you wanted any job? Most welcome and you are invited,Come on and see, Here have many jobs,You are ready? You can apply here following any job, I hope will get better benefit. We are provide to you -<br /><a href="http://joballfind.blogspot.com/" rel="nofollow">Government Job</a><br /><a href="http://joballfind.blogspot.com/" rel="nofollow">IT Job</a><br /><a href="http://joballfind.blogspot.com/" rel="nofollow">Banking Job</a><br /><a href="http://joballfind.blogspot.com/" rel="nofollow">Education Job</a><br /><a href="http://joballfind.blogspot.com/" rel="nofollow">Overseas News</a><br /><a href="http://joballfind.blogspot.com/" rel="nofollow">NGO Jobs</a><br /><a href="http://joballfind.blogspot.com/" rel="nofollow">Jobs for Doctors</a><br /><a href="http://joballfind.blogspot.com/" rel="nofollow">Textile Job</a><br /><a href="http://joballfind.blogspot.com/" rel="nofollow">General Management</a><br /><a href="http://joballfind.blogspot.com/" rel="nofollow">Medical Representative</a>.<br />I hope, You got your searching matter,Thanks and Take Care !!!<br />Anonymoushttps://www.blogger.com/profile/00745876891090060362noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-45402957969931290842007-03-12T23:25:00.000-07:002007-03-12T23:25:00.000-07:00Big hugs to you.You might not have cried, but I di...Big hugs to you.<BR/><BR/>You might not have cried, but I did.<BR/><BR/>Love, love, love to you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10136851.post-28682621125872333282007-03-05T18:50:00.000-08:002007-03-05T18:50:00.000-08:00I have a daughter that was born with many severe c...I have a daughter that was born with many severe congenital heart defects. We didn't know she would be, nor did we know my husband was probably prone to carry some because of his family's health history. Had we known, we would have still tried for a baby. She was born completely unhealthy and the lovely surgeons at Stanford fixed her up.<BR/><BR/>She's a thriving almost 5-year old. Just wanted to share our story because 1) had we known, we would have made that jump and 2) had we not known we would have made that jump.<BR/><BR/>Hugs from Austin, TxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-10136851.post-86343781451814025712007-03-05T14:00:00.000-08:002007-03-05T14:00:00.000-08:00So many people have said important and eloquent th...So many people have said important and eloquent things to you. I have nothing different to add to what's been said.<BR/><BR/>I'd just like to add that because you have the courage to share the things happy, sad, scary, and exhilarating that happen in your life, you are not alone. We may not be in your living room physically, but we are here for you virtually. *hugs*Unknownhttps://www.blogger.com/profile/14490351397557989717noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-53907713904328186752007-03-03T09:45:00.000-08:002007-03-03T09:45:00.000-08:00You have touched so many people with your writing....You have touched so many people with your writing. I am a Black woman living in Harlem and you probably wouldn't realize how much I relate to your thoughts and worries, and quirks. I always read your blog and rarely comment, but I love it. I don't know you, but I think that maybe you have something different to give this world. Maybe you will touch other children's lives like you have touched ours.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10136851.post-92185016170432138302007-03-03T07:21:00.000-08:002007-03-03T07:21:00.000-08:00I have two boys with fx syndrome, and a girl witho...I have two boys with fx syndrome, and a girl without. Did not know I was a carrier when the boys were born, but chanced it to have a third (and was hoping for a non-fx, it's a long story...) We went to a geneticist when the baby was 10 weeks gestational--and he said, yea we could test invitro, and make our decision from that. And then he turned around and showed us a wall of very thick books, and said. These are all the genetic disorders we know about. We can test for fx, but it doesn't mean the child is free from anything else. So what did this mean? Well, we tested anyway, we were lucky...and since then, I've decided that I'm lucky for ALL my kids. Even my special boys that are challenging are mine, and wonderful. Yes there are struggles, and we are on a different path than we had imagined many years ago, there are wonderful moments of happiness too...<BR/><BR/>And saying all that, I know how it feels to be diagnosed a carrier. I wish you the best.ahttps://www.blogger.com/profile/18337594132529976505noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-19728129558087923152007-02-28T20:17:00.000-08:002007-02-28T20:17:00.000-08:00ah, K, I'm so sorry.ah, K, I'm so sorry.ramblin' girlhttps://www.blogger.com/profile/05101217614181692147noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-55975797944753173232007-02-28T20:09:00.000-08:002007-02-28T20:09:00.000-08:00I hope you don't think this is too shallow, becaus...I hope you don't think this is too shallow, because I am a stranger who is really feeling very sorry for you at this moment.<BR/><BR/>But this image just popped into my head, and I wanted to share it with you.<BR/><BR/>A little chinese girl about 4 years old, with a blonde, zaftig mom.<BR/><BR/>It's a possibility.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10136851.post-48766415572601491252007-02-28T15:53:00.000-08:002007-02-28T15:53:00.000-08:00This is probably going to make me very unpopular.I...This is probably going to make me very unpopular.<BR/><BR/>I'm sorry that you have discovered that you are a 'carrier' of Fragile X. But...<BR/><BR/>So what!?<BR/><BR/>What does this information really tell you? Just that you have a little bit of insight into the possibilities of a yet-to-be-conceived child. You have a little bit of an edge in knowing what you MIGHT get.<BR/><BR/>Non-carriers can still have autistic children. Or children with Down's Syndrome, or a myriad of other genetic anomalies. Or they could be born genetically "normal" (whatever that is) and end up with an umbilical cord around their neck that impairs them for life. Or they could be born perfectly healthy and suffer SIDS or step in front of a school bus.<BR/><BR/>SO FUCKING WHAT?<BR/><BR/>You can't let the fear of statistics and possibilities and what-ifs guide your life. <BR/><BR/>Raising any child is hard, but by all accounts the most rewarding thing you will ever do. <BR/><BR/>Denying a child, fragile X or not the opportunity to have a breezy elegant mother who will love him/her fiercely would be the tragedy here.Jesterhttps://www.blogger.com/profile/10824364102356014103noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-27855455874604425002007-02-27T22:14:00.000-08:002007-02-27T22:14:00.000-08:00Maybe you should have looked at them and said, "Wh...Maybe you should have looked at them and said, "What are you - retarded?"<BR/><BR/>So sorry about the bad humor. But I have nothing else....Sharihttps://www.blogger.com/profile/15385334281789964098noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-12115792583164504792007-02-27T16:53:00.000-08:002007-02-27T16:53:00.000-08:00add me to the list of first time commenters.My hea...add me to the list of first time commenters.<BR/>My heart breaks for my image of you sitting alone in a waiting room and perhaps alone getting that phone call. <BR/>I'm sorry you had to do it alone, but by writing about it you are no longer alone.. across the miles we all are with you.<BR/>xoxo<BR/>JCCraverhttps://www.blogger.com/profile/13162735846773014967noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-50432891660711998902007-02-27T11:07:00.000-08:002007-02-27T11:07:00.000-08:00Another first-time poster, and another hug-donatio...Another first-time poster, and another hug-donation.Cordeliahttps://www.blogger.com/profile/01849041442302786577noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-60269234002822766512007-02-27T11:04:00.000-08:002007-02-27T11:04:00.000-08:00There are a million little unwanted babies out the...There are a million little unwanted babies out there in the world who need mothers. Not all that we are is genetic, nurture over nature is a real thing. You may yet be a mother one day. (Hugs)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10136851.post-64861805186539838742007-02-27T09:09:00.000-08:002007-02-27T09:09:00.000-08:00I think that going to get that testing, to face th...I think that going to get that testing, to face that music before you're even sure you'll have to someday, was incredibly brave and strong, even though maybe you didn't feel brave and strong. (People always tell you you're brave and strong when you feel scared and vulnerable, I find.) My thoughts are with you, and I wish you luck and peace.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10136851.post-18345806092744794532007-02-27T08:47:00.000-08:002007-02-27T08:47:00.000-08:00Well this sucks big Moby Dick. :(I wish I had some...Well this sucks big Moby Dick. :(<BR/><BR/>I wish I had something profound to say to make you feel better but I don't think anything I say could work.<BR/><BR/>Just know that we are all here for you.<BR/><BR/>Keep your chin and your boobs up, <BR/>TexTexInTheCityhttps://www.blogger.com/profile/15192298682500188305noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-75652644303653645302007-02-27T08:01:00.000-08:002007-02-27T08:01:00.000-08:00What an amazing post.I am facing similar issues, e...What an amazing post.<BR/><BR/>I am facing similar issues, even though I am single now, I would love to have children someday but the thought of passing on the disease I have, which appears to be genetically linked, is truly scary. I really admire your courage. Lots if hugs to you.Erinhttps://www.blogger.com/profile/11405440048938532631noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-496699513598433872007-02-27T07:19:00.000-08:002007-02-27T07:19:00.000-08:00Sending you love...xoxoSending you love...<BR/>xoxoCarolinehttps://www.blogger.com/profile/10484230168313197196noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-5800912520774532682007-02-27T06:21:00.000-08:002007-02-27T06:21:00.000-08:00Just delurking to give a big virtual hug. I have ...Just delurking to give a big virtual hug. I have been reading your blog for over a year, and have been so impressed.<BR/><BR/>My sister and I were both adopted (we're in our twenties now) and it's frightening to meet with a doctor and tell them that I have no family history. It makes your life feel like one big unknown. <BR/><BR/>But your post is making me put on my big girl pants and consider taking more control.<BR/><BR/>Thank you.<BR/>~KL in DCAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-10136851.post-33996198009231909832007-02-27T05:58:00.000-08:002007-02-27T05:58:00.000-08:00When my two sons with autism (PDD - mild variety) ...When my two sons with autism (PDD - mild variety) were very young, I often wondered if I should have had them or not. Was it worth it - it was so hard because toddlerhood is hard enough and when you have two whirling dervishes running through the house and experts who give you a bleak outlook, it's hard not to question whether or not I should have had them. Had there been a test - had I taken it before they were born, I probably wouldn't have had them.<BR/><BR/>They are older now - still tough but things are easier. They talk. They are in their own worlds but they often let me in - something the experts said probably wouldn't happen. The hard work has borne some fruit. I was contemplating your post as I put my 5 year old on the bus - off to regular kindergarten - something the "experts" said wouldn't happen.<BR/><BR/>If the choice were my two sons as they are, or no children at all, ever - I pick my beautiful, misundersttod children.<BR/><BR/>Of course, there will always be part of me that will wonder what life with typical children would have been like.<BR/><BR/>But life without them? Too, too empty for me to even consider.<BR/><BR/>I'm not sure what sort of mutation you are up against here - but please don't make lasting decisions about your future based on a few tests. Science marches forward... things are changing quickly. <BR/><BR/>As my husband often points out when I am feeling overwhelmed, even the perfect baby at birth isn't a guarentee that the child will grow up without issues. Parents sometimes lose their perfect babies in adolescence to substance abuse. Accidents. Cancer. A host of things can go wrong at any point - to any of us.<BR/><BR/>I wish you peace, whatever you decide. Having children is hard, no matter what - I am not sure if you are better off knowing what you know or not. But I do hope whatever you decide brings you peace.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10136851.post-16644103536736037212007-02-27T05:17:00.000-08:002007-02-27T05:17:00.000-08:00::big hug::I too have some genetic issues that I c...::big hug::<BR/><BR/>I too have some genetic issues that I chose not to take the chance of passing on to a baby. As much as I've always wanted a child of my own.. and believe me.. I wanted one bad.. to pass on my legacy and my father's heritage.. but I'd never be able to forgive myself for passing on some of the physical things that have haunted me all of my life... I'd never forgive myself if I caused another person to have to live thru that.<BR/><BR/>But some days it's SO hard..... especially right now, but then again.. look at the world today.. it's hard to even THINK about bringing a new baby into it.<BR/><BR/>Hang in there girl.. and give yourself a little extra love today.Miahttps://www.blogger.com/profile/04960617637819340725noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-88293168617953336222007-02-26T19:40:00.000-08:002007-02-26T19:40:00.000-08:00{{{{HUGS}}}} from a Central Illinois IIF.Kristy, y...{{{{HUGS}}}} from a Central Illinois IIF.<BR/><BR/>Kristy, you are in my thoughts.Dizzy Ms. Lizzyhttps://www.blogger.com/profile/06089738977432199662noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-85578089899371399352007-02-26T19:30:00.000-08:002007-02-26T19:30:00.000-08:00You are amazing and incredibly brave to take this ...You are amazing and incredibly brave to take this step. I've read your posts where you make fun of your own irresponsibility--you just did the most intelligent and responsible thing a person can do before having kids. I'm sorry the news wasn't better. With this kind of integrity you'd make a fantastic mother.Tracyhttps://www.blogger.com/profile/07575091605862822846noreply@blogger.comtag:blogger.com,1999:blog-10136851.post-89760313476984127012007-02-26T18:06:00.000-08:002007-02-26T18:06:00.000-08:00Oh, K. I don't know what to say. I want to give ...Oh, K. I don't know what to say. I want to give you a huge hug right now. Be prepared to be tackled at your concert if I don't see you before then. You will be hugged. (I might also hump your leg for good measure. I make no promises, though.)<BR/><BR/>((HUG))Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10136851.post-77670155927246658072007-02-26T17:43:00.000-08:002007-02-26T17:43:00.000-08:00BG's hubby is wicked smart. :)It kind of makes yo...BG's hubby is wicked smart. :)<BR/><BR/>It kind of makes you wonder, is it better to know or not? And, I think, for the most part, it is better to know. At least you have some way of preparing for things.<BR/><BR/>More hugs for you and Ish and your sis and her hubby and the baby.<BR/><BR/>loveloveloveAnonymousnoreply@blogger.com